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We can dream
2008-01-28 15:32:00
I am doing so much better. The steroid treatment is over and I feel back to normal. I'm praying that I am done with this flare. It had been so long since I had felt this good, that I went out and had my hair cut, went shopping and visited a friend. All normal stuff, but for us chronics it is special. People who are not suffering with illness have no concept of what it is like to loose those normal things. They go shopping, visit friends, get their hair done without thinking much about it. But, for us, it is a day of planning, praying that we make it through and that there we are not sick and tired from the event the next day. How, I long for those carefree days of old.If I could just go anywhere at anytime, I would be so happy. To not worry about the outcome of my choices, whether I have my medicine or even if the weather will hold out, would be heavenly. We can dream, can't we.But, I did go out. And it was wonderful. I love those days when all seems right with the wor...
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My Addiction
2008-01-24 12:24:00
While I was hard into the grasp of Lupus, I was put on pain medicine. I was told that it would help the Fibromyalgia. I was in a lot of pain and trusted the Doctors. The problem was, I was put on Oxycontin.It started, as they say, innocently enough. I took them as prescribed. I really had no idea that I had become addicted to pain medicine.My behavior began to change. I no longer searched within my self for sin. I no longer stilled my mind to hear the voice of my God. I no longer saw with the eyes of Christ. I no longer saw good in people. I had become a different person, full of suspicion, doubt, fear.I began to act without thinking. I found myself, one day, with a gun in an abandoned house, thinking about ending my life. I don't know how I got there or why I was thinking this way, except that Satan wanted to kill me. I did, reach out & call someone who talked with me and deescalated the situation.I saw people as the enemy. I became judgemental of some & proud over others. This be...
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Brain Fog
2008-01-22 14:33:00
Yesterday, I put a roast in my slow cooker at 11:00 am. At 3:00 pm, I went to check on it. I had not turned it on. I went into the bedroom to do laundry. I found some books that needed to be put away. Put the books away, then hours later, found the laundry still in the bedroom.Decided to make lunch for myself and my mother. Got to the kitchen, started putting dishes in the dish washer - didn't notice the roast- finished with the dishes and went back to the living room to sit back down. Never did get lunch.The brain is not tracking to well. I feel like I can focus. But, apparently I'm fooling myself. It's a good thing I no longer work. It could be a total disaster. I would staple when I need to paper clip. Leave the copies in the copier and go home for lunch and forget to go back.I look at all this and have to laugh. It does entertain me. Better to be entertained than to feel depressed by it. I can only rely on my God to see me through and that I do. I assume th...
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New Poll
2008-01-20 23:56:00
My need to know has taken over me and I have created a poll in the Lupus Support Prayer Room.Every so often I will ask a question, to satisfy my curiosity and to hopefully create pondering in your, dear readers, mind.I hope you visit and take part. Who knows, it could be just the thing you need. While there leave me a prayer request. I'm always ready to pray. Just click on the Prayer request to the right and your there.
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New genetic mutation halts Lupus
2008-01-20 13:05:00
This hopeful news is all over the internet. If you have not heard about it or read about it yet get it here.
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My hormone testimony
2008-01-17 14:04:00
I have been reading a lot about hormones and Lupus lately. So, I thought I would tell you about my own strange situation with hormones and Lupus.I was diagnosed at 48 years of age. I was starting the change. Within a year my period had stopped and blood tests confirmed I was now done with having children. I went through another year of agony with the symptoms of Lupus.After my friends fasted and prayed for me and I went into healing, the blood test showed that I had not gone through menopause. Within a month I was back having periods. How weird is that? I went through menopause and then came back out of it.The doctor was a bit stumped. He had the medical test in front of him, but found it all to weird. He did say to me, that there is an assumption that hormones play a part in Lupus. I didn't care, I felt great.So, the next idea was, that since I felt so much better, it would be a good idea to keep me having periods and to not let me go back into menopause. So, I started ...
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Alone
2008-01-15 15:27:00
Lupus is a lonely disease. You don't always have the look of being sick,so people don't get it. You suffer alone. You fight alone. You survive alone.My husband is an extraordinary man. He can't feel my pain, but he does identify with me. He grieves when I do and tries to give me strength. But, I am alone. Inside this shell of flesh I am the only one who feels it, looks at it for what it is and I am the one that calls it by name. Lupus.Lupus is reflected in the way I see the world, in the way I define my relationships and in the way I look at the outcome of my life. I am alone in this disease. It is I who carries it to its completion and it is I who has such intimate knowledge of it characteristics. It is I that curses it and it is I who has to learn how to embrace it.So alone, with this enemy am I. It takes up my precious time and steals from me. It jumps at every chance to isolate me and discourage me. Sometimes it leaves me alone and teases me with health. But, ...

Power in words
2008-01-13 12:26:00
Sometimes, I think it better to not contact nor see the Doctors. I know, that's dumb, but that's the way it feels sometimes.I'd been symptomatic for several months before I called my Doc about the knot in my neck and the pain associated with it. When he told me it was Sjorgrens, I thought he was probably wrong.When I get a diagnosis, I usually start with acceptance. The Doctor is right. But, there is the thing in the back of my brain that says, "NO" That's wrong. That is the way it was with the Sjogrens.He tells me I have Sjogrens, I say ok. Hang up the phone, go to the Internet, look up the symptoms, and decide the Doc is wrong. I don't have dryness at all. Of course, I ignore that dryness can come in degrees and perhaps I have not, really, even noticed. I tend to ignore a lot of symptoms and pain.So, I start the steroids and within a week my eyes start drying up. At first, I ignored, but then I realized what was happening. Now, my thoughts go to. Doctor said it, n...
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A Good day
2008-01-11 06:13:00
My day was soooo much better. I actually, got out of my chair and did house work. It felt great. My pain was minimal and I could work through it. Took a few breaks now and then to not get overly tired. Got everything done I wanted to. I did start having problems when I went to the grocery. During the walk, around the store, I started feeling pain in my feet and calves. I kept thinking "NO" I'm not going to start again. I'm going to finish what I have started. The pain became intense, I started some focused breathing and focused shopping.I finished and got all I needed. But, when I got home and rested a bit. The pain and stiffness began to increase. All in all, I did good. I got dinner for my husband and mother. Made snacks for my new cell group and sat down to wait for the evening meeting.It was my first cell group meeting. Went great and I forgot I hurt. Now, that it is over....I hurt!!!!! My shins, feet and back have had enough. But, God is good. I am not going...
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Hopefull article
2008-01-09 21:37:00
"Profound immune system discovery opens door to halting destruction of lupus"came across this article yesterday. I may be slow at finding these things, but I figure I'm not the only one. So, I'm posting the link here, for your reading pleasure.What a hopeful article.
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Help!! I need help from myself
2008-01-09 20:44:00
I am sick and tired of being sick and tired. The pain and steroids are getting the best of me. I've been trying to do house work and can get very little done at a time. I start a cell group, here in my home tomorrow night and I'd like my house to look descent. Yea, right. The thing is, friends have offered to come over to help me clean, but,I don't want them to. I appreciate the offer but, want to do it myself.Do you think it is pride, or am I being stubborn, or am I afraid that I'm giving up. When I look at all three, I think they all apply. Need to work on that. Take it to God and plead for mercy.Anyway, my break is up. Back to the house work.Please, God, give me the energy,

Wonderful Magazine
2008-01-09 17:30:00
I have been reading "But You Don't Look Sick" an on line magazine. I really enjoy reading it. IF you have not read it yet, I recommend you give it a try.
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Great Article
2008-01-09 05:47:00
Wonderful, wonderful article on living with Lupus and the changes the one suffering with Lupus goes true. A great read. Read it here.
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Eyes on God
2008-01-07 20:03:00
Well, I got through the weekend. Even, thanks to steroids, got to go to church. I have told quit a few people that the Lupus is back and have had various reactions. Mostly, they say it is an attack from Satan. Does not feel that way to me. I believe it to be a test.Some ask, what sin am I in. I'm always sinning, but, I have not entered into anything new. I did, start, to ask myself that question. But, decided that I was not going there. I was not going to dwell on looking for a sin in my life. I will, instead, concentrate on the glory of God. To stay in that negative thinking will only hurt me. God will reveal if I need to change something in my life.I, again, am sad but not devastated. Whatever the reason for this flare or relapse, I will endure and all the while keep my eyes on God.
More About: Eyes

Sjogren's
2008-01-04 19:51:00
I just got a diagnosis of secondary Sjogren's. What to do? My saliva glands are swollen on the right side of my face. I don't have dry mouth, but do have a fair amount of pain.Doctor is ordering steroids again. Short term, but, I really don't want to go there again. I'm posting a link that gives information on Sjogren's here. Starting steroids this afternoon, I'm hoping to feel better by Monday.

Warm
2008-01-03 16:46:00
The pain of Fibromyalgia has been so extreme for me this winter that I did some research on how the cold affects Fibromyalgia.Mostly what I was looking for was a remedy. I know cold affects it and I think this year it is so much colder that it is affecting me more.I found that there is not much help. But,I did find that layers of clothes helps. So, because my left foot is so cold, I put on two pairs of socks. That helped for one day. Then, on top of the extra sock, I now have my foot wrapped in a heating pad. SUCCESS!!Foot is now warm.The extra layers of clothes help a bit, but not as much as I would like. So....last year I bought my husband a massage cushion to sit on. Turns out, it also, warms up. Now, I'm sitting on the warm cushion.So, here I sit. My foot in two pairs of socks, wrapped up in a heating pad. My butt, on a heated cushion, layers of clothes on and a blanket across my lap. Do I feel better? I certainly feel warm.

Confused
2007-12-30 15:49:00
Well, it's Sunday and I'm still in pain. Don't feel much like going to church. Have not made that decision yet.When I was first diagnosed with Lupus, I had a lot of things happen to me that confuse where I'm at now.My thyroid quit working. The doc's say that is because the Lupus killed it. I started going through the change. I gained weight.Before and after weight gain:All this happened together. So, now, I have no idea what was caused by the Lupus and what is just from getting old and going through so many changes.Do I hurt because I have aged or do I hurt from fibromyalgia. Am I stiff from the same. Confusing. Maybe, it is just because it is cold. All I do know is I hurt and I am getting tired of it.

Fighting Symptoms
2007-12-29 17:22:00
Every since I started this blog, I have had to fight the pain of Fibromyalgia. I have not had symptoms for years. I can only believe that it is an attack from Satan to stop me from writing this blog.There must be someone out there who will be healed or find comfort in this blog. I come against this attack in the power of the name of Jesus Christ. I will not fall for this scheme and will continue to walk in the path that Christ has put me on. If you, also, need prayer, just leave me a post on the prayer link in the upper right hand corner of this blog.If God is with you, who can come against you.
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Natural Remedy
2007-12-26 14:08:00
I found this article on the web. Natural Lupus Remedy .I had never been much into natural remedies before, but, last year I had a hysterectomy and was put on hormones. I really had trouble with the hormones. I could not think, felt emotional and attacked by everyone. A friend told me to take Black Cohose. What an amazing difference it made. No hot flashes and I could think.So, after that experience, I am pro natural remedies. This is a good article and I know how important it is to stay healthy. Whatever it takes to stay off steroids.

Christmas Trials
2007-12-22 15:36:00
When I was so terribly sick and it would be Christmas , I would wonder if this would be my last Christmas.My mind would encompass thoughts of my children and husband and all they would do when I was gone. I would weep over my children's youth and pray for longer time on this earth. Christmas was hard. I struggled to make Christmas the way it would be if I was not ill. To continue in the traditions of the past. Cooking, wrapping, shopping were all so difficult. But, I was determined to make each Christmas special to my family.For those of you with these lingering thoughts and fear, I say you are right to continue to make things as normal as possible. It is good for you and for your family. But, for those of you who can't, because you are to ill, I say keep your spirits as joyous as possible. This is good for you and for your family.It is important to keep joy in your heart. To dig deep down into your spirit and live in the moment with happiness. It can be so hard, but, to...
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My story
2007-12-19 14:15:00
In 2001 I was diagnosed with Lupus. It was quite frightening. I'd only been a Christian a few years & was having some difficulty understanding. I had begun to walk in the Healing ministry & had seen God heal a few people by using me, but, here I was ill.Lupus is a strange Illness. I did my research & realized I was in trouble. "Lean upon the Lord". That is all I had. There is no cure for Lupus & it is a try & see with maintaining your health.A few months after I was diagnosed I got fluid on my heart. This caused the Doctors to put me on steroids. Now, the Lupus had already messed up my thyroid so I had gained weight, but, with the steroids I gained 150 pounds. I had always been thin, sometimes to thin - this was difficult for me. Not, difficult in the esteem department, difficult for me to carry around. So, I ended up on a cane.God told me one night that I would be sick for two years. This was good news - not knowing if he meant I'd be dead or he...
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Why a blog about Lupus
2007-12-18 19:41:00
My dear friend,I have created this blog to offer you support and encouragement as you walk the lonely and long walk with Lupus . It will be a place where you can share thoughts, pain, and celebration. I understand the feelings that you are having because, I too, have been diagnosed with Lupus. But, my story has turned out wonderfully.I have been healed by the name of Jesus Christ from Lupus. I intend to share my experience of healing with you and pray for your healing. One of the reasons I have started this blog is that a lot of you readers have been searching through the Internet for Christian healing of Lupus. I have another blog Supernatural Christian where many of you have come to find your answer. This blog will be totally dedicated to you and your needs.I am for you, not against you. I am dedicating myself to your needs. You are the most important subject of this blog.Given55
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