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My Parkinson's Diary

My Parkinson's Diary
Diagnosed with Parkinson’s disease in 2000, Deep Brain Stimulation surgery in 2007, I’m a 55-year old Federal Employee who works from home because my walking and balance have gone to hell. Still, I attempt to attack this disease… mostly by laughing
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Podcast Episode #11 Online and Available
2007-05-14 08:14:00
Episode #11 of "What's Shakin'? -- A Parkinson's Podcast " is online and available. Here are the links to the news stories described on the podcast. There was lots of press about THIS story last week.  The treatment options for patients with early Parkinson's expanded Wednesday with the approval of a new drug in patch form _ a first for medicines to treat symptoms of the disease. The once-daily Neupro patch contains a drug called rotigotine, which has not been sold before in the United States, the Food and Drug Administration said. The drug patch, made by Schwarz Pharma AG, is the first for the treatment of symptoms of Parkinson's disease. Sounds  like just the thing for parkies who either have trouble taking, or trouble REMEMBERING to take their pills.  We’ll see how this one works out. Here’s a story about the discovery of a link between PD and a condition known as narcolepsy. Now a team of UCLA and Veterans Affairs researchers think they know why the two...
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An Elevator Counterpoint
2007-05-10 09:16:00
3 p.m. yesterday. I’m heading out the door.  I’m one of those early arrivers, early departers.  I get to work at about 6:30 a.m. and I leave at about 3 p.m.  For one thing, traffic between here and home isn’t nearly as bad in the early mornings and early afternoons.  For another thing, there’s always room in the parking garage when I get here.  If you wait until a more reasonable hour – say, 8 a.m. – you’ll be lucky to find a spot in the parking garage.  And it’s a long walk to the other parking lots on the campus.  So I blow this pop stand every day around 3-ish. I’m standing at the elevator when a colleague walks up behind me.  This is someone I see from time to time, we are on a first name basis but have never really been what one would call conversational acquaintances.  Still, when you’re waiting for an elevator, ya gotta say something. “Makin’ a break for it?” I asked. “Yeah, getting out of here early tod...
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You Asked For It, You Got It! SOLETRA!!!
2007-05-09 09:14:00
Well.  That’s a relief. One of my biggest problems is that I’m just too damn curious for my own good.  Once it is clear that something is going to “happen to me” I want to read everything I can find on the subject.  I want to know what kind of scars I’m going to have on the top of my head – the semi-circular ones or the racing stripes.  I want to know what the bone anchors look like.  (Hex nuts!  They look like little hex nuts!  And I get four of them.  In my skull!  But only temporarily – they get removed when I have the implant surgery.) For the last couple days, I’ve been wondering about the IPG devices that will be installed on June 25th.  I know there are basically two models made by Medtronics.  One is the “Sole tra” which controls one set of electrodes.  The other is the “Kinetra” which controls two sets.  I’ve seen diagrams of both in place.  With the Soletra model, you get one und...
NIH Research Radio -- May 4, 2007
2007-05-04 19:00:00
#0031 Report from NIH Research Radio -- Topics for Friday, May 4, 2007 Coming up on this edition, a clinical trial from the National Heart, Lung and Blood Institute shows that people with pre-hypertension who reduced their sodium intake by 25 to 35 percent had a 25 percent lower risk of total cardiovascular disease over the 10 to 15 years during which they cut back on salt. Special Correspondent Belle Waring tells us about a clinical research trial she's volunteered for. The National Eye Institute marks Healthy Vision Month with some information on how to get yourself checked for glaucoma. There are some new insights into how cells repair their DNA that could point the direction to a possible way to stop or slow the onset of Huntington's disease. And we hear about the importance of HIV Vaccine Awareness Day, which is coming up on May 18. But first, Wally Akinso shares a report that shows how having elevated risk factors as a young adult increases the likelihood of coronary c...
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NIH Research Radio -- April 20, 2007
2007-04-20 19:00:00
#0030 Report from NIH Research Radio -- Topics for Friday, April 20, 2007 Coming up on this edition, the most recent analysis of a long-term NIH-funded study found that children who received higher quality child care before entering kindergarten had better vocabulary scores in the fifth grade than did children who received lower quality care. A National Heart, Lung, and Blood Institute study shows that as rates of diabetes have risen in the U.S., the proportion of cardiovascular disease linked to diabetes has also increased. There's evidence that the ancient art of Tai Chi may help older adults avoid getting a painful condition known as shingles by boosting the immune response to the varicella vaccine. And we'll hear all about deep brain stimulation for the treatment of Parkinson's Disease from a neurosurgeon who may soon be performing the procedure on the host of this podcast. But first, some advice on how to help your children deal with the fears that may be caused by such tr...
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NIH Research Radio -- April 6, 2007
2007-04-06 19:00:00
#0029 Report from NIH Research Radio -- Topics for April 6, 2007 Coming up on this edition, Wally Akinso has a story about how MRI is being used to diagnose early disease in the opposite breasts of women diagnosed with breast cancer. Bill Schmalfeldt sits down with Dr. Griffin Rodgers, acting director of the National Institute of Diabetes and Digestive and Kidney Diseases to talk about what that institute has in mind for National Minority Health Month. A survey funded by the National Institute on Drug Abuse shows that fewer than 10 percent of drug-abusing offenders are getting the kind of treatment they need. Bill talks about his recent visit to an NIH-funded clinical research center at Vanderbilt University in Nashville where he's taking part in a clinical trial. But first, Wally tells us about a national study on addiction to prescription painkillers. Episode #0029 show notes E-mail Bill Schmalfeldt Podcast archives
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NIH Research Radio -- March 23, 2007
2007-03-23 18:00:00
#0028 Report from NIH Research Radio -- Topics for Friday, Marc h 23, 2007 Coming up on this edition, Wally Akinso shares a report about older mothers and Cesarean section births. Bill Schmalfeldt sits down for a chat with registered dietician Joanne Gallivan from the National Diabetes Education Program regarding National Nutrition Month. There's some interesting news from the Framingham Heart Study about cardiovascular risks to folks whose parents live long lives. Bill visits with Dr. Harrison Wein and talk about the online e-column he edits. But first, Wally has a report about some new insights into treatment of schizophrenia. Episode #0028 show notes E-mail Bill Schmalfeldt Podcast archives
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NIH Research Radio -- March 9, 2007
2007-03-09 18:00:00
#0027 Report from NIH Research Radio -- Topics for Friday, Marc h 9, 2007 Coming up on this edition, Wally Akinso has a report about how the National Institute on Drug Abuse has unveiled its first consumer publication dedicated to explaining the science of addiction. Think that the soon-to-be-retiring baby boomers will head into retirement as the healthiest generation of elderly people ever? A study funded by the National Institute on Aging says - maybe not! Bill Schmalfeldt sits down for a chat with Dr. Brenda Edwards from the National Cancer Institute to discuss some good news from the American Cancer Society. And Wally shares some good news about American women and heart disease. But first, some evidence that both "nature" and "nurture" may have an affect on the children of problem drinkers. Episode #0027 show notes E-mail Bill Schmalfeldt Podcast archives
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NIH Research Radio -- February 23, 2007
2007-02-23 18:00:00
#0026 Report from NIH Research Radio -- Topics for Friday, February 23, 2007 Coming up on this edition, Wally Akinso has a report about the results of a new study that may help improve the diagnosis and treatment of two debilitating childhood mental disorders, pediatric bipolar disorder and a syndrome called severe mood dysregulation. Then Bill Schmalfeldt has a few things to say about the importance of clinical research in the ongoing search for new treatments and cures for diseases that have plagued mankind for centuries. In other words - he's not just a spokesperson, he's also a consumer! But first, Wally talks about the science of addiction. Episode #0026 show notes E-mail Bill Schmalfeldt Podcast archives
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NIH Research Radio -- February 9, 2007
2007-02-09 18:00:00
#0025 Report from NIH Research Radio -- Topics for Friday, February 9, 2007 Coming up on this edition, Bill Schmalfeldt visits with Dr. Louis Staudt, chief of the Lymphoid Malignancies Section, Metabolism Branch, with the Center for Cancer Research at the National Cancer Institute. He's going to explain why we need to know more about genomic profiling. Wally Akinso has a report on an NCI study that shows an improvement in survival of adults with an uncommon form of leukemia. February 7 was National Black HIV/AIDS Awareness and Information Day. We'll hear from Dr. Anthony S. Fauci, director of the National Institute of Allergy and Infectious Diseases. Wally has a story about a new and improved website offered by the National Institute of Nursing Research. Bill has a story about a new study that shows that women who take folic acid supplements early in their pregnancy can substantially reduce their baby's chances of being born with a facial cleft. And which imaging technology doe...
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NIH Research Radio -- January 26, 2007
2007-01-26 18:00:00
#0024 Report from NIH Research Radio -- Topics for Friday, January 26, 2007 Coming up on this edition, Bill Schmalfeldt sits down for a chat with Dr. Sanya Springfield, Director of the Center to Reduce Cancer Health Disparities and Chief of the Comprehensive Minority Biomedical Branch to discuss the new human papilloma virus vaccine and other issues. Wally Akinso will tell us about the National Center for Research Resources announcing that it will provide nearly $11.5 million to fund 11 Science Education Partnership Awards across the nation. The National Heart, Lung and Blood Institute is launching a campaign to increase awareness of chronic obstructive pulmonary disease. We'll tell you all about it. But first, why aren't older Americans discussing their use of complementary and alternative medicine with their doctors? Episode #0024 show notes E-mail Bill Schmalfeldt Podcast archives
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NIH Research Radio -- January 12, 2007
2007-01-12 18:00:00
#0023 Report from NIH Research Radio -- Topics for January 12, 2007 Coming up on this edition, Bill Schmalfeldt has a story about how staying in shape mentally could help older folks maintain their thinking skills according to a new study funded by the National Institute on Aging and the National Institute of Nursing Research. And speaking of aging, it's a common misperception that depression is just another part of getting older. We'll tell you about some new information on the NIH Senior Health website designed to battle that stereotype. Bill sits down with Dr. Harrison Wein, editor of the NIH News in Health to discuss the January issue. Wally Akinso has a story on how results from the National Heart, Lung, and Blood Institute's Growth and Health Study suggest that overweight girls as young as 9 are at increased risk for short-term and long-term problems that increase the chances of developing cardiovascular disease. Also, The National Institute on Alcohol Abuse and Alcoholis...
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NIH Research Radio -- December 29, 2006
2006-12-29 18:00:00
#0022 Report from NIH Research Radio -- Topics for Friday, December 29, 2006 Coming up on this edition, we'll go back in time to August when Bill Schmalfeldt sat down with Dr. Marston Linehan, a National Cancer Institute researcher, to talk about what's being done regarding research into the causes and treatments for Kidney Cancer. Wally Akinso has a story on how the National Institute of Allergy and Infectious Diseases has confirmed that medically performed circumcision can significantly lower the risk of adult males contracting HIV through heterosexual intercourse. The National Institute on Aging has a booklet available spelling out the dangers of hypothermia, as well as how folks can avoid it. But first, there's good news to be found in a survey of 8th, 10th and 12th graders. Episode #0023 show notes E-mail Bill Schmalfeldt Podcast archives
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